A Big Birthday and Video Reveal

Happy, Happy Birthday to my incredible 12 year-old-girl!

If only I’d known 12 years ago what I know today…

Ah, words escape me.

I think I’ll let this just completed, ready for the world to see, YouTube video speak for me instead!

Click here to view – Preemie – A Letter to My Daughter 

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This video has been in the works since August!  To think that it’s just now ready, right after Thanksgiving and on Andie’s 12th birthday, such exquisite timing!

If you’d like to read the story behind the song in the video, click here—http://www.enidames.com/my-words/

And please, by all means, share with anyone and everyone you know!

Happy Day!

Babies in the Storm

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There were days when Andie was in the NICU that I truly believed things couldn’t possibly get any worse.

And then they would.

Another surgery.

Another scare.

Another “take my breath away, I’ll never breathe again moment.”

And then the surgery, the scare, the moment would ultimately pass.  Andie would somehow have weathered another storm.  But the residue of those traumas would linger right under the surface of my skin, continuing to swirl like grey storm clouds, reminding me not to get too comfortable, for lightening could strike again at any moment.

When the power went out in New York City during Hurricane Sandy and the back up generators at NYU’s Langone Medical Center failed, the parents of those teeny, tiny babies being kept alive by machines, tubes and wires, found out that things can actually go far beyond worse.

This is a video clip of a 20/20 episode where a group of utterly incredible, heroic NICU nurses describe what the experience of keeping those babies breathing, and at the same time, evacuating them in the dark down nine flights of stairs, was like.  http://www.youtube.com

I tried to imagine myself as one of the parents of those evacuated babies.  I imagined I’d never recover from such an ordeal, and wondered how the parents of those critical newborns would survive a scare of that magnitude.

And then I thought of my friend Yamile, and I knew that it was possible not only to recover, but to find inspiration in a traumatic event.

I met Yamile at the National Association of Neonatal Therapist Conference in Texas.  I saw her again at the Preemie Parent Alliance Conference in Chicago.

I was at the airport on my way home, having just made it through the security line, when I saw her friendly face emerged from the other line. It turned out both of us had an extra hour to spare before boarding our flights.

We found a small table at one of the crowded restaurants and sat across from each other.

“We’ve now met at two conferences and I don’t even know your story,” I told her.

And that’s when I learned about Baby Zack, her baby born eleven years ago, around the same pound and a half size as Andie.  Zack was in the NICU when a storm descended upon Houston, Texas, leaving the city without power and her baby’s hospital without power, when the backup generators failed.

“I ran in at seven in the morning,” she told me.  “The NICU nurses were covering the babies in warm blankets.  I cried out to all of them ‘Open your shirts! Get those babies on your chests and keep them warm.’”

And they did.

And from seven in the morning until he was transferred in the afternoon, Yamile kept Zack warm on her chest while her husband manually pumped air into his tiny baby’s tiny lungs.

“I promised him then that if he survived I would do something special to honor him.”

And she did.

While Zachary lived in the NICU, Yamile hardly left his side.  Each night it broke her heart when she had to leave him alone in his isolet.

“It was spring,” she said, “and the stores had racks of gardening gloves displayed.  I looked at those gloves and saw hands.”  So she took a pair home, slept with one around her neck so it would be full of her scent, and placed it on Zack every time she had to leave him behind in the NICU.

Soon after Zack was discharged, the hospital called asking Yamile if she would ever makes her “hands” for the other babies.  And with that, she began to fulfill her promise to her son.

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You can hear Yamile’s incredible story for yourself on this recent Today Show Interview.

When Yamile pulled a soft pink fleece “hand” out of her bag and handed it to me, I held it to my cheek.  If only I had this way back when I thought.

“Take that home to your daughter,” she said.  “Zaky still sleeps with his when I am away.”

Sitting on the plane, I reflected upon my “chance” meeting with Yamile.  I’d called home right before take-off, only to find a very weepy Andie who didn’t want to go to bed until her  Mommy was home.  The story of my new friend, and the gift I was carrying home for her, served to soothe her tears and coax her into bed.

I wrapped the Zaky around my neck throughout the plane ride home, and just as promised, placed it over Andie’s sleeping shoulders when I arrived that night.

Every night since, she asks me to put her Zaky over her shoulders.  “Do it in a special way,” she tells me, and then snuggles in, safe and held throughout the night.

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So now when I try to imagine how the parents of those babies in the storm will recover from such trauma, I think of Yamile and hope her rainbow after the storm will serve as inspiration.

If you want to learn more about the Zaky, the Kangaroo Zak wrap, or how Yamile’s designs are helping reduce apnea and bradycardia in preemies, check out her company’s website www.nurturedbydesign.com

While working on this post, I came across an interesting article about women in Kenya turning to Kangaroo Care as solution to the shortage of incubators. You can read that here  Babies In a Pouch: A Hopping Success in Kenya 

Tomorrow is World Prematurity Day.  May it be a day that not only raises awareness about this global epidemic, but a day that brings peace, healing and hope to all those who have been affected by premature birth.

Photo Friday

Gave a talk to the Inner Wheel Club at The Hidden Inn, in South Kortright, New York last night!  Right down the road from where my husband grew up and one town over from my publisher, Hatherleigh Press.  Would you believe that connection wasn’t made until after I’d signed a contract?  (You can read about all that in an older post http://www.kaseymathews.com/big-book-news/)

Finally had the pleasure of meeting my wonderful editor from Hatherleigh, Anna Krusinski, in person today. After months and months of back and forth via email, obsessing over every sentence, every word, every comma and period, it was truly a treat to relax and chat over lunch!

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Hitting the road shortly to head home to New Hampshire for tomorrow’s Local Author Day at the Wilton Public Library! Please stop by if you can, 9:30 – 1:00.   http://www.wiltonlibrarynh.org/wilton/

Happy Friday!  XO